Written by Dr Ava Easton, the CEO of The Encephalitis Society, Life After Encephalitis provides a unique insight into the experiences of those affected by encephalitis, sharing the rich, perceptive, and often powerful, narratives of survivors and family members.
“Dr Ava Easton has done something remarkable with this book” states Susannah Cahalan, author of Brain On Fire: My Month of Madness, “she has given life and support to patients and families living through this silent disease.
“From the first-person cases to the in-depth research and passionate dedication to her work as the head of the Encephalitis Society, Ava Easton has given us a gift with this tremendously important book”.
Encephalitis, which causes inflammation of the brain, is a devastating condition whose impact upon people should not be underestimated, with up to 6,000 cases in the UK and potentially hundreds of thousands worldwide each year. It robs people of abilities most of people take for granted – leaving people without their loved ones, and even in those families where the person affected survives the person they once knew can be dramatically changed.
Ava interviewed many people affected by encephalitis for her book, which features several nightmarish accounts of changed personalities, increased violence, and even attempted suicide, alongside uplifting tales of hope, love and of lives renewed.
As Ava says, “I wanted to give a voice to survivors of encephalitis and provide an insight into the experiences of those affected – be they survivors, family members or those left bereaved. Their stories are heartfelt, at times distressing to witness, but also full of hope and inspiration.”
A condition that has gained global recognition due to its portrayal in the popular television series Hannibal , encephalitis can affect anybody at any time, including the sister of Olympic swimming gold medallist, Rebecca Adlington, OBE:
“Life After Encephalitis has given a voice to the millions of people worldwide affected by this horrible condition. As the sister of someone who fought her own battle with encephalitis, I believe it was important that my mum contributed to Ava’s book so that others can take some comfort in knowing they are not, and never will be alone.”
Engaging and easy to read, Life After Encephalitis provides a unique insight into an often misunderstood condition, along with providing a better understanding of the experiences of those whose lives it touches. The book will be an asset to those affected by the condition and professionals alike.